The ERC funding partners include a growing number of advocacy, professional and governmental organizations all focused on improving the lives of those living with epilepsy.
Aicardi Syndrome Foundation
The Aicardi Syndrome Foundation is a volunteer-based, non-profit organization dedicated to raising research funds and awareness for Aicardi syndrome. Registering your child with the Aicardi Syndrome Foundation allows your family to receive the latest research news, announcements and professional information as quickly as possible, as well as learning about ongoing research studies that your child may qualify for. Through the Foundation’s support and family involvement, we can make a difference in improving the lives of children with Aicardi syndrome.
American Epilepsy Society
The American Epilepsy Society is one of the oldest neurological professional organizations in this country. The Society seeks to promote interdisciplinary communications, scientific investigation and exchange of clinical information about epilepsy.
Centers for Disease Control and Prevention
CDC conducts and supports research that guides our public health programs. This work includes conducting studies on self-management, improving surveillance methods to better define the impact of epilepsy on different populations, and evaluating the effectiveness of interventions to improve quality of life for people with epilepsy.
Child Neurology Foundation
Established in 2001, the Child Neurology Foundation (CNF) 501c(3) is a national nonprofit organization that works through advocacy, research, and educational initiatives to ensure optimal care for all children living with a neurologic disease. CNF'S Mission In Action is to advocate for children and adolescents with neurologic disorders, fund research awards that advance treatments and cures for pediatric neurologic diseases, advocate for the recruitment of physicians in the field of child neurology, and provide families and caregivers with the educational information and resources necessary to access quality health care.
CURE's mission is to cure epilepsy, transforming and saving millions of lives. We identify and fund cutting-edge research, challenging scientists worldwide to collaborate and innovate in pursuit of this goal. Our commitment is unrelenting.
Department of Veterans Affairs
The Department of Veterans Affairs (VA) set upon its mission to revolutionize services for the Veterans afflicted by epilepsy and other seizure disorders. The VA founded the Epilepsy Centers of Excellence (ECoE), establishing 16 sites that are linked to form 4 regional centers. The ECoE seek to provide the best possible epilepsy care to Veterans throughout the United States with state-of-the-art diagnostic and therapeutic services. Our goal is to deliver the highest quality of ongoing medical care to Veterans suffering from epilepsy. We also seek to promote outreach and educational efforts for both patients and their physicians in order to further the understanding of this chronic condition.
Research funding is available through the VA office of research and development for those with VA positions (http://www.research.va.gov/).
Dravet Syndrome Foundation
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.
The Epilepsy Foundation, a national non-profit with more than 47 affiliated organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The Foundation works to prevent, control and cure epilepsy through community services; public education; federal and local advocacy; and supporting research into new treatments and therapies. The Foundation works to ensure that people with seizures have the opportunity to live their lives to their fullest potential.
FACES - Finding a cure for epilepsy and seizures
FACES (Finding A Cure for Epilepsy and Seizures) is affiliated with NYU Langone Medical Center and its Comprehensive Epilepsy Center. FACES funds research to improve epilepsy care, advances new therapies, and fosters a supportive community for children, families and caregivers who live with the challenges of epilepsy.
The mission of FACES is to improve the quality of life for all those affected by epilepsy and seizures.
Glut1 Deficiency Foundation
The mission of the Glut1 Deficiency Foundation is to increase awareness of and advocacy for Glut1 Deficiency, educate others, and support researchers as they work toward better understanding, better treatments, and an ultimate cure.
Hope for Hypothalamic Hamartomas
Hope for Hypothalamic Hamartomas (Hope for HH) is a volunteer-based nonprofit organization founded by parents of children with hypothalamic hamartomas (HH). Our goal is to create a single, credible source for information about the diagnosis, treatment, and support of individuals with HH. Every family touched by this rare disorder has a unique and often heart-breaking story of how they attained a correct diagnosis.
International Foundation for CDKL5 Research
To lead the way in finding a cure and treatments for CDKL5 disorder by funding global research efforts, and increasing awareness of CDKL5 disorder, while enhancing the quality of life for those affected by CDKL5 disorder, by providing information, programs, and services.
The LGS Foundation is a non-profit organization dedicated to improving the lives of individuals with Lennox-Gastaut Syndrome through research, programs, and education
National Institute of Neurological Disorders and Stroke (NINDS)
The mission of NINDS is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.
To support this mission, NINDS:
Supports and performs basic, translational, and clinical neuroscience research through grants-in-aid, contracts, scientific meetings, and through research in its own laboratories, and clinics.
Funds and conducts research training and career development programs to increase basic, translational and clinical neuroscience expertise and ensure a vibrant, talented, and diverse work force.
Promotes the timely dissemination of scientific discoveries and their implications for neurological health to the public, health professionals, researchers, and policy-makers.
PERF - Pediatric Epilepsy Research Foundation
Enhance the quality of life of children with epilepsy and/or other neurologic disorders. To accomplish this mission, the Foundation, in particular seeks to support:
- Efforts to improve treatment options for infants, children and adolescents with epilepsy.
- Meritorious clinical and basic science research related to epileptic conditions in children.
- The encouragement of the recruitment and education of young physicians in the field of child neurology.
At Ring14USA, our main goals are:
- promoting and funding research initiatives to find effective treatments and therapies for the children affected by these disorders,
- raising awareness through education, and
- supporting the children, families, and caregivers in as many ways as possible.
We professionally review all research initiatives into Ring14, and we coordinate our international efforts with our sister organization in Italy, Onlus Ring14.
The Epilepsy Study Consortium
The Epilepsy Study Consortium's goal is to streamline the processes for determining the potential impact of new therapies, and reduce the organizational and regulatory barriers that hinder investigators and patients from carrying out this type of research.
Tuberous Sclerosis Alliance
The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected.
The Tuberous Sclerosis Alliance was founded in 1974 by four mothers coming together to provide fellowship, generate awareness, pursue more knowledge and provide hope to those that shared the common bond of tuberous sclerosis complex. These goals are still driving the organization today.
U.S. Department of Defense
Vision - The ERP envisions a time when the causative links between TBI and epilepsy are understood and post-traumatic epilepsy is preventable
Epilepsy Program Cover Image
» Click on Image to View Program Booklet
The ERP was initiated in 2015 to develop an understanding of the magnitude of post-traumatic epilepsy (PTE) within the military and to expand research into the basic mechanisms by which traumatic brain injury (TBI) produces epilepsy. To this end, and to satisfy the ERP's Mission and Vision, the ERP has identified the following research Focus Areas for FY 16:
•Epidemiology: Epidemiological characterization of PTE following TBI, which may include:
?Risk factors such as demographics, genetic factors, organic head injury factors, or type of insult
?Differentiation of PTE and Psychogenic Non-Epileptic Seizures (PNES)
?Outcomes including latency to epilepsy, morbidities and comorbidities, and mortality
?Pre-existing conditions including psychological and psychiatric risk factors
• Markers and Mechanisms: Identifying markers or mechanisms (via clinical prospective or preclinical models) that address PTE: ?Early detection
•Models of PTE: Development of new models or better characterization of existing etiologically relevant models for PTE, including repetitive TBI.
•Psychogenic Non-Epileptic Seizures: Exploration of the epidemiology, mechanisms, risk factors, or markers of PNES subsequent to TBI. Preclinical research on non-pharmacological interventions in this population is also encouraged.
For more information about how to join the ERC as a funder please contact us at: info@EpiRC.org